Please Read (In Pain)

[UTD Toker]

Hey Guys THANKS FOR READING:thumbsup: ....

For the past year I have been diagnosed with a semi-rare infectious disease called hidradenitis suppurativa and have been in turmoil for almost 3 months now.

In short, "H.S." is a symptom(Sp) that affects a person's sweat glands where they are the most dense (groin, anus region) by causing sweat glands to clog and secrete sweat under you skin, forming boils aroind the groin and anus regions the size of golf balls (NOT FUN).

Anyways my dermatologist and I have a great relationship and I am currently getting scripted 24 10Mg/660 APAP Hydrocodone usually weekly. Anyways because I'am only 19 I feel afraid to tell my doctor or parents that I really need more painkillers as I don't want to make them think I'm some kind of junkie or just abusing them. Usually I have to take 2 of the which only most of the time takes care of the pain, but I am worried about my day to day constipation and liver damage possibly for me in the future.

I would really appreciate some advice on what I should do, as I wish there was something that would be just as efective in killing the pain without doing so much damage to my body (but also fuckng me up wouldn't hurt :thumbsup: lol)

Happy Toking :joint1:

UTD Toker Reviewed by UTD Toker on 02-28-2007. Please Read (In Pain) Hey Guys THANKS FOR READING:thumbsup: ....:cool: For the past year I have been diagnosed with a semi-rare infectious disease called hidradenitis suppurativa and have been in turmoil for almost 3 months now. In short, "H.S." is a symptom(Sp) that affects a person's sweat glands where they are the most dense (groin, anus region) by causing sweat glands to clog and secrete sweat under you skin, forming boils aroind the groin and anus regions the size of golf balls (NOT FUN). Rating: 5

[robert42]

hey read this maybe some of you symptoms are here..

Strain Name Recommended to treat Condition…

Afghooie x Haze
Pre-Menstrual Syndrome

Alien Train Wreck
Asthma

Auntie Em
Crohn's Disease, Multiple Sclerosis

Blue Fruit
Crohn's Disease, Muscle Spasms

Catalyst
Pre-Menstrual Syndrome

Dynamite
Asthma, Crohn's Disease, Hepatitis C

Sour Diesel
Edema, Epilepsy, Fibromyalgia, Radiolopathy

Green Queen
Epilepsy, Neck / Spine Pain

Jack Herer
Anxiety, Fibromyalgia

Lollipop
Cachexia, Degenerative Bone/Disc Disease, Edema, General Pain, General Seizures, Glaucoma, Migraine Headaches, Multiple Sclerosis, Nausea, Post-Traumatic Stress Disorder

Medicine Woman
Diabetic Neuropathy, General Pain, General Seizures, Glaucoma, Hepatitis C, Muscle Spasms, Nausea, Radiolopathy

New York Diesel
Migraine Headaches

Northern Lights
Anxiety, Radiolopathy

Northern Lights / Jamaican
Arthritis

Original Mystic
Epilepsy

Phaght Betty
Cachexia, Degenerative Bone/Disc Disease, Post-Traumatic Stress Disorder

Queen Bee Neck / Spine Pain

Sensi Star
Migraine Headaches

Snow White Pre-Menstrual Syndrome

Sweet Blu Degenerative Bone/Disc Disease, Diabetic Neuropathy, Edema, Fibromyalgia, Muscle Spasms, Nausea, Neck / Spine Pain

Train Wreck
Anxiety, Arthritis, Diabetic Neuropathy

TX
Arthritis, Asthma, General Pain, General Seizures, Glaucoma, Multiple Sclerosis

White Widow
Cachexia, Hepatitis C, Post-Traumatic Stress Disorder

[UTD Toker]

hey read this maybe some of you symptoms are here..

Strain Name Recommended to treat Conditionâ?¦

Afghooie x Haze
Pre-Menstrual Syndrome

Alien Train Wreck
Asthma

Auntie Em
Crohn's Disease, Multiple Sclerosis

Blue Fruit
Crohn's Disease, Muscle Spasms

Catalyst
Pre-Menstrual Syndrome

Dynamite
Asthma, Crohn's Disease, Hepatitis C

Sour Diesel
Edema, Epilepsy, Fibromyalgia, Radiolopathy

Green Queen
Epilepsy, Neck / Spine Pain

Jack Herer
Anxiety, Fibromyalgia

Lollipop
Cachexia, Degenerative Bone/Disc Disease, Edema, General Pain, General Seizures, Glaucoma, Migraine Headaches, Multiple Sclerosis, Nausea, Post-Traumatic Stress Disorder

Medicine Woman
Diabetic Neuropathy, General Pain, General Seizures, Glaucoma, Hepatitis C, Muscle Spasms, Nausea, Radiolopathy

New York Diesel
Migraine Headaches

Northern Lights
Anxiety, Radiolopathy

Northern Lights / Jamaican
Arthritis

Original Mystic
Epilepsy

Phaght Betty
Cachexia, Degenerative Bone/Disc Disease, Post-Traumatic Stress Disorder

Queen Bee Neck / Spine Pain

Sensi Star
Migraine Headaches

Snow White Pre-Menstrual Syndrome

Sweet Blu Degenerative Bone/Disc Disease, Diabetic Neuropathy, Edema, Fibromyalgia, Muscle Spasms, Nausea, Neck / Spine Pain

Train Wreck
Anxiety, Arthritis, Diabetic Neuropathy

TX
Arthritis, Asthma, General Pain, General Seizures, Glaucoma, Multiple Sclerosis

White Widow
Cachexia, Hepatitis C, Post-Traumatic Stress Disorder

Thanks man, the ones for chrones disease is what they thought I had at first, then they found that my G.I. track was fine. But is usually the more potent the weed the better pain relief or does it just depend on the strain? Im on Remacade to help put the disease into remission, but to no avail. I've heared about cold water displacement of the Acetimophin but I dont want to screw up and ruin a pkiller.

[birdgirl73]

I was reading about HS a minute ago after I was wondering if patients are ever prescribed Accutane (isotretinoin) for that condition, just as cystic acne patients are, and indeed, one of the sites I found said that Accutane sometimes helps, although it's not as helpful for HS as it is for cystic acne. Has your doctor ever suggested Accutane? You may have already tried that.
http://www.hs-foundation.org/pdf/200...tiva_Jemec.pdf

This stuff came from one of the sites I found:
Some Effective Treatments for Hidradenitis Suppurativa include:
Hidradenitis can be controlled, but cannot be cured properly. Sometimes surgery is required to drain infected areas or to remove scarred tissue or even large areas of skin.
Topical Antibiotics are one of the best treatment option for curing hidradenitis suppurativa fast. It is applied over the affected skin.
Retinoids: These have been shown to be effective in some chronic cases of hidradenitis suppurativa.
Weight loss will also help in controlling hidradenitis suppurativa.
High-dose systemic steroids (eg, prednisolone 60 mg/d) are useful as adjuvant's to antibiotics, and they act by reducing the inflammatory process.
Systemic Antibiotics are necessary when the condition is flaring or when a patient is undergoing a severe case of hidradenitis suppurativa.
Tight-fitting clothing is to be strictly avoided.
Contraceptive Pills and the combination of estrogens with 100 mg of cyproterone acetate have been used.
_________________________

Real sorry you have to deal with that condition, UTDSmoker. That sounds like a completely painful, awful drag. So do they think HS is an auto-immune inflammatory disorder like rheumatoid arthiritis and that's why Remicade is sometimes tried?

[UTD Toker]

I was reading about HS a minute ago after I was wondering if patients are ever prescribed Accutane (isotretinoin) for that condition, just as cystic acne patients are, and indeed, one of the sites I found said that Accutane sometimes helps, although it's not as helpful for HS as it is for cystic acne. Has your doctor ever suggested Accutane? You may have already tried that.
http://www.hs-foundation.org/pdf/200...tiva_Jemec.pdf

This stuff came from one of the sites I found:
Some Effective Treatments for Hidradenitis Suppurativa include:
Hidradenitis can be controlled, but cannot be cured properly. Sometimes surgery is required to drain infected areas or to remove scarred tissue or even large areas of skin.
Topical Antibiotics are one of the best treatment option for curing hidradenitis suppurativa fast. It is applied over the affected skin.
Retinoids: These have been shown to be effective in some chronic cases of hidradenitis suppurativa.
Weight loss will also help in controlling hidradenitis suppurativa.
High-dose systemic steroids (eg, prednisolone 60 mg/d) are useful as adjuvant's to antibiotics, and they act by reducing the inflammatory process.
Systemic Antibiotics are necessary when the condition is flaring or when a patient is undergoing a severe case of hidradenitis suppurativa.
Tight-fitting clothing is to be strictly avoided.
Contraceptive Pills and the combination of estrogens with 100 mg of cyproterone acetate have been used.
_________________________

Real sorry you have to deal with that condition, UTDSmoker. That sounds like a completely painful, awful drag. So do they think HS is an auto-immune inflammatory disorder like rheumatoid arthiritis and that's why Remicade is sometimes tried?

Hit it on the head birdgirl :thumbsup: , I'am also 2 weeks into taking 40Mg of Amnestine(Generic Accutaine), which is like vitamin a, which makes me really dehydated and makes my lips chapped. So far, however, most of my once big cists have gone away, but the problem there are spots on my backside that are deep within the skin, causing me pain when im sitting or standing for 5 min. or longer (etc. school or work). Is there any advice you could give me on painkillers and what I should do?(considering you're the best medical person I have meet to this point on cann dot com.I also vape dailyand am wondering if marijuna could be in neway worsen my condition? Thanks

[yochrono]

UTD... Must be University of Texas @ Dallas? Right next to ITT Tech in Richardson?

[UTD Toker]

B.I.N.G.O.

[yochrono]

B.I.N.G.O.

Lets roll a phatty

[UTD Toker]

Lets roll a phatty

sounds like a fucking plan to me:thumbsup: haha i live in plano though what about you?

[birdgirl73]

Sweetie, I'm definitely not an authority on this or on painkillers or on cannabis for medicinal use. I live here in the same DFW area as you, and we don't really have much help to be had, considering that this doggone state is so conservative that medicinal MJ is not anywhere close to happening. Even if you had all the good medical strains at your disposal, you'd still have to try them to see which got the best effect for you personally.

I don't know if marijuana could worsen your condition. I know from what I was just reading that smoking is not indicated for HS because it can aggravate the condition, but I assumed that meant cigarette smoking. Cannabis might well be contra-indicated, too, for reasons that aren't yet clear to either of us. See what your dermatologist thinks.

For the generic Accutane, you probably already know this, but you have to drink tons of water with that, both to keep hydrated and to keep your kidneys well flushed. Even with tons of water, that medicine still dries out nearly every gland in your body, most particularly your sebaceous (oil) glands. All the stuff I've read recommends keeping your liquid intake very high, and you can use Chapstick or Carmex or Blistex on your lips. My longtime best friend took it for cystic acne when the drug was very new (back in the stone ages when we were teenagers), and I remember that dryness of his lips and skin. Two of my son's friends took it, too.

Do they think over-the-counter anti-inflammatory NSAIDs like ibuprofen are of any benefit to HS? I would think they might be just as effective as heavy narcotic analgesics. Ask your doctor about those. For other inflammatory conditions like muscle aches and menstrual cramps, both of which are caused by pain chemicals called prostaglandins, over-the-counter meds like ibuprofen are in many cases far better than narcotic pain relievers, as a rule. Again, see what your doctor thinks.

As far as the backside pain, do you have a doughnut pillow you can sit on? Have you seen those? People can get them at medical supply stores for various conditions affecting the nether regions. It's just a pillow with a hole in it so you can sit on the edges of your bottom and not have the painful areas bearing weight on a chair. There are medical supply stores here all over the DFW area, and the best one I know of is called Taylor Drug on the southeast corner of Alma and Parker in Plano.

Best of luck with this, UTD Smoker. My heart goes out to you. Sorry not to be of more help, but I know only enough to know that the best adivce anyone can give you is to talk to your own doctor.