Quote Originally Posted by birdgirl73
Sweetie, I'm definitely not an authority on this or on painkillers or on cannabis for medicinal use. I live here in the same DFW area as you, and we don't really have much help to be had, considering that this doggone state is so conservative that medicinal MJ is not anywhere close to happening. Even if you had all the good medical strains at your disposal, you'd still have to try them to see which got the best effect for you personally.

I don't know if marijuana could worsen your condition. I know from what I was just reading that smoking is not indicated for HS because it can aggravate the condition, but I assumed that meant cigarette smoking. Cannabis might well be contra-indicated, too, for reasons that aren't yet clear to either of us. See what your dermatologist thinks.

For the generic Accutane, you probably already know this, but you have to drink tons of water with that, both to keep hydrated and to keep your kidneys well flushed. Even with tons of water, that medicine still dries out nearly every gland in your body, most particularly your sebaceous (oil) glands. All the stuff I've read recommends keeping your liquid intake very high, and you can use Chapstick or Carmex or Blistex on your lips. My longtime best friend took it for cystic acne when the drug was very new (back in the stone ages when we were teenagers), and I remember that dryness of his lips and skin. Two of my son's friends took it, too.

Do they think over-the-counter anti-inflammatory NSAIDs like ibuprofen are of any benefit to HS? I would think they might be just as effective as heavy narcotic analgesics. Ask your doctor about those. For other inflammatory conditions like muscle aches and menstrual cramps, both of which are caused by pain chemicals called prostaglandins, over-the-counter meds like ibuprofen are in many cases far better than narcotic pain relievers, as a rule. Again, see what your doctor thinks.

As far as the backside pain, do you have a doughnut pillow you can sit on? Have you seen those? People can get them at medical supply stores for various conditions affecting the nether regions. It's just a pillow with a hole in it so you can sit on the edges of your bottom and not have the painful areas bearing weight on a chair. There are medical supply stores here all over the DFW area, and the best one I know of is called Taylor Drug on the southeast corner of Alma and Parker in Plano.

Best of luck with this, UTD Smoker. My heart goes out to you. Sorry not to be of more help, but I know only enough to know that the best adivce anyone can give you is to talk to your own doctor.
I can't explain how much of a help you are birdgirl....btw about your questions, over the counter pain rtelievers don't seem to help I've also seen the pillows you mention, but the pain persists when i stand as well as sit (I'm a waiter at the Gaylor Texan Hotel Btw), and the cists (Sry for detail) are like in my butt crack region and so i dought any device for putting pressure off one cheek would help, as it still hurts even when i try to change my sitting posture in anyway.. Is there a pain medicine that is effective and not to hard to convince my dermatologist to write me a script for that is some sort of narcotic that wont harm my liver? (Narcotics are the only way of controlling my pain.) Also birdgirl, whenever I smoke, I seem to notice more pain but am not really in more pain? (Sry kinda hard to explain) I don't know if its because i just pay more attention when im stoned or what, but my absesses seem to puss out (I don't know the medical term)
more frequently when i smoke or take painkillers for some reason, but doesnt seem to make them any worse. I have even considered to move to a mj friendly state when I'm older....do you think this disease would get me a MJ card? I know a doctor would be the best person to talk to, but I am afraid of my dermatologist thinking less of me for smoking cannabis. Thanks for all your help again,

Tyler