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  1.     
    #21
    Senior Member

    Upper GI Hopes

    pepurr,

    Just got back in town and saw your thread here.
    Are you going to do Pegasus treatments or do they have the Telaprevir treatments yet?
    Teleprevir was recently developed as a stand alone treatment or in combination with Pegasus.It has a shorter treatment time,but is somewhat difficult to tolerate.

  2.     
    #22
    Senior Member

    Upper GI Hopes

    Quote Originally Posted by coolslayer
    pepurr,

    Just got back in town and saw your thread here.
    Are you going to do Pegasus treatments or do they have the Telaprevir treatments yet?
    Teleprevir was recently developed as a stand alone treatment or in combination with Pegasus.It has a shorter treatment time,but is somewhat difficult to tolerate.
    I don't know. Yesterday after seeing my psycologist, I was told I will start the chemo May 6th. It would be nice to have a shorter treatment. 48 weeks is a long time. The older I get, the larger of a percentage it is of my remaining life. By the time this is over, I'll be going on 54 years old. Hopefully I will clear this the first time around. I read I got a 50% chance of that.

    What ever type treatment it is, I'll be thankfull for it. The VA is paying for all of it. I don't have any health insurance, and I don't have the $90,000+ to pay for it my self.

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  4.     
    #23
    Senior Member

    Upper GI Hopes

    Really glad to hear the VA is actually going to help you.50-50 could be worse.Stay with us Bud,as much as you can,you are right in feeling the love here. We do care. I really can't express it in words on the net but I wish you nothing but the very best Airman.

  5.     
    #24
    Senior Member

    Upper GI Hopes

    Teleprevir treaments are shorter and have an above 80% success rate.

  6.     
    #25
    Senior Member

    Upper GI Hopes

    I hope they do have Telaprevir to treat me with. 24 weeks sounds a heck of a lot better than 48.

    The latest news I have on it is, "Vertex Pharmaceuticals Inc. is preparing for a possible early 2011 launch of Telaprevir, the hepatitis C drug". http://pharmaexecnews.com/pharmaceuticals/telaprevir-launch-approaches-vertex-profits/

    By the time that happens I will be almost through with the current approved treatment regamen.

    If it turns out I am a non-responder, "The Triple Therapy Combination of Telaprevir, Pegasys and Ribavirin Will Become the New Decision Resources Clinical Gold Standard for Hepatitis C Treatment Non-Responders in 2013". http://www.dresources.com/News-and-Events/Press-Releases/DB-Hepatitis-C-Virus-011910

    In other news, I called around to find out if, sense I have a firm date for the start of treatment, I could go ahead and get a recommendation and approval for a MMJ card. Unfortunately the answer is no. I have to wait till I am already started on treatment. This aspect of the law needs to be fixed. By the time people with HCV get their MMJ card, they will be a month into treatment. That means people like me will have to suffer needlessly during this lag time. The law needs to be amended such that people who have proof of a start date for HCV treatment should be allowed to apply for their MMJ card. They could even date the card to be valid starting on the treatment start date.

    If I could apply now, I would have my card in hand about the time my treatment starts. :hippy:

  7.     
    #26
    Senior Member

    Upper GI Hopes

    They must have moved it back,the article I previously read said 2010.

  8.     
    #27
    Senior Member

    Upper GI Hopes

    Pepurr I'm F-ing tired of being a guinea pig too!!

  9.     
    #28
    Senior Member

    Upper GI Hopes

    Pepurr,how are you doing?

  10.     
    #29
    Senior Member

    Upper GI Hopes

    Quote Originally Posted by chance942
    Pepurr,how are you doing?
    Hanging in there, thanks for asking.

  11.     
    #30
    Senior Member

    Upper GI Hopes

    Glad to hear it Bud.

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