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03-26-2010, 07:46 AM #1Senior Member
Upper GI Hopes
pepurr,
Just got back in town and saw your thread here.
Are you going to do Pegasus treatments or do they have the Telaprevir treatments yet?
Teleprevir was recently developed as a stand alone treatment or in combination with Pegasus.It has a shorter treatment time,but is somewhat difficult to tolerate.coolslayer Reviewed by coolslayer on . Upper GI Hopes Tomorrow I go in for an upper GI so the doc can check that ulcer. Hopefully it is gone. If it is gone, they can start the hepatitis C treatment on me. It has been a long row to hoe, and this isn't even near over. Once the chemo starts, it will continue for 48 weeks. Well, it will as long as they see a drop in viral count by 12 weeks. If not, they will call me a non-responder and stop treatment. If I can make it through for 48 weeks, even then I will only have a 50% chance of clearing this Rating: 5
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03-26-2010, 12:15 PM #2OPSenior Member
Upper GI Hopes
Originally Posted by coolslayer
What ever type treatment it is, I'll be thankfull for it. The VA is paying for all of it. I don't have any health insurance, and I don't have the $90,000+ to pay for it my self.
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03-26-2010, 10:12 PM #3Senior Member
Upper GI Hopes
Really glad to hear the VA is actually going to help you.50-50 could be worse.Stay with us Bud,as much as you can,you are right in feeling the love here. We do care. I really can't express it in words on the net but I wish you nothing but the very best Airman.
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03-27-2010, 01:28 AM #4Senior Member
Upper GI Hopes
Teleprevir treaments are shorter and have an above 80% success rate.
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03-27-2010, 01:52 AM #5OPSenior Member
Upper GI Hopes
I hope they do have Telaprevir to treat me with. 24 weeks sounds a heck of a lot better than 48.
The latest news I have on it is, "Vertex Pharmaceuticals Inc. is preparing for a possible early 2011 launch of Telaprevir, the hepatitis C drug". http://pharmaexecnews.com/pharmaceuticals/telaprevir-launch-approaches-vertex-profits/
By the time that happens I will be almost through with the current approved treatment regamen.
If it turns out I am a non-responder, "The Triple Therapy Combination of Telaprevir, Pegasys and Ribavirin Will Become the New Decision Resources Clinical Gold Standard for Hepatitis C Treatment Non-Responders in 2013". http://www.dresources.com/News-and-Events/Press-Releases/DB-Hepatitis-C-Virus-011910
In other news, I called around to find out if, sense I have a firm date for the start of treatment, I could go ahead and get a recommendation and approval for a MMJ card. Unfortunately the answer is no. I have to wait till I am already started on treatment. This aspect of the law needs to be fixed. By the time people with HCV get their MMJ card, they will be a month into treatment. That means people like me will have to suffer needlessly during this lag time. The law needs to be amended such that people who have proof of a start date for HCV treatment should be allowed to apply for their MMJ card. They could even date the card to be valid starting on the treatment start date.
If I could apply now, I would have my card in hand about the time my treatment starts. :hippy:
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03-27-2010, 02:46 AM #6Senior Member
Upper GI Hopes
They must have moved it back,the article I previously read said 2010.
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03-27-2010, 07:28 AM #7Senior Member
Upper GI Hopes
Pepurr I'm F-ing tired of being a guinea pig too!!
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04-01-2010, 10:00 PM #8Senior Member
Upper GI Hopes
Pepurr,how are you doing?
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04-02-2010, 12:43 AM #9OPSenior Member
Upper GI Hopes
Originally Posted by chance942
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04-02-2010, 12:53 AM #10Senior Member
Upper GI Hopes
Glad to hear it Bud.
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