Minieres Disease

[Islandborn]

Anyone heard of this or know anyone who has been diagnosed? Apparently I have it. 2 ENT Dr.s have said. Its a low level ring or hum I get in my left ear that gets worse or better from day to day. After time, if it's bad, ya wanna kill something. I choose to smoke because it calms my nerves, it doesnt subside the symptoms.

Does anyone know of this? Does anyone know of treatments or anything?

Islandborn Reviewed by Islandborn on 09-21-2009. Minieres Disease Anyone heard of this or know anyone who has been diagnosed? Apparently I have it. 2 ENT Dr.s have said. Its a low level ring or hum I get in my left ear that gets worse or better from day to day. After time, if it's bad, ya wanna kill something. I choose to smoke because it calms my nerves, it doesnt subside the symptoms. Does anyone know of this? Does anyone know of treatments or anything? Rating: 5

[DOUGAL25]

I looked it up and one of the main symptoms is vertigo...

MMJ will treat the nausea related to vertigo.
You're suppose to avoid alcohol, tobacco, and caffeine...

If the vertigo gets out of control - then surgery is the ultimate option

shoot, time for class
:stoned:

[Islandborn]

ive expierienced that but motion sickness stuff cures that.....its the constant noice that drives me insane, makes my anxiety and temper terrible. Affects time w my family....sucks. And neither of the Dr.s had any ideas. I refuse to take pills like xanax or valium so I guess im screwed.

[DOUGAL25]

Tinnitus is what you are experiencing; perceived sound with no external stimulus provided.

There are a good amount of treatments for the tinnitus, but they aren't really statistically reliable.

The most interesting I found: Berthold Langguth, German neurologist would apply an electric or magnetic current for stimulation over the head of the patient to reduce ringing sound.
Or..
Direct stimulation of auditory cortex by implanted electrodes
Or...
* Low-pitched sound treatment has shown some positive, encouraging results.(UC, Irvine press release)


There's also surgery, but that would result in unilateral(you left ear) deafness or hearing loss.

I would go the electrical stimulation route for treatment, try to find a doctor nearby that specializes in that, and see how that helps your tinnitus.
:stoned:

ps..There's also a stat that says after 30 years of having Meniere's disease, 50% of patients have it become a bilateral disease (both ears)...hopefully that won't be that case

[Islandborn]

Ive been reading this stuff also, none of it sounds pleasant. The last Dr. said he didnt think it was tennitus because the effect is just one ear and I dont have any constant dizziness. Its the feeling of pressure and the ringing that really get to me on bad days. Its been so frustrating. I told my dr. that I smoke marijuana at night to ease my nerves and help me sleep and he didnt seem to concerned......except for the fact that I run the chance of being arrested and what not. It's depressing. No real answers or solutions out there it seems. Dietary stuff mostly Ive noticed which i try to adhere to. Just sucks all around. Im done complaining. Wish I lived in Cali.....for the access to medicine, not for the taxes they pay.

[HighHopes48]

Anyone heard of this or know anyone who has been diagnosed? Apparently I have it. 2 ENT Dr.s have said. Its a low level ring or hum I get in my left ear that gets worse or better from day to day. After time, if it's bad, ya wanna kill something. I choose to smoke because it calms my nerves, it doesnt subside the symptoms.

Does anyone know of this? Does anyone know of treatments or anything?

Islandborn,

If you haven't visited these two sites, then spend a lot of time there and get familiar with what you think you have.
MENIERES.ORG -- Coping support site for Meniere's Disease. You are not alone!
Otoneurology Index

I've spent several years thinking that this is what I have, but there is no real diagnosis for it. It's a long process of elimination much like trying to diagnose the disease fibromyalgia. I have constant tinnitus and often suffer from nausea/slight dizziness when I lean over, rotate my head, etc. I've been to the best ENT in my area and have had many many tests, but he can't say I have it for sure.

If all you are experiencing is tinnitus, then you are a long way off from having full blown Menieres. Rotational vertigo is very pronounced in those who truly have the disease, and it is very debilitating. I have never had this, but I do feel nauseated (car sick) most days and both of my ears ring constantly.

I realize we are on a weed forum, but I can't say that I've received any ear related medicinal benefits from smoked cannibus or tincture. The only thing that helps me with the nausea (not the tinnitus) is a 0.5 mg. tab of clonazepam. It will not address the tinnitis. I don't think there is any cure for that. But if your ear problem causes you to become nauseas, then clonazepam will truly help. Good luck!

[Islandborn]

Islandborn,

If you haven't visited these two sites, then spend a lot of time there and get familiar with what you think you have.
MENIERES.ORG -- Coping support site for Meniere's Disease. You are not alone!
Otoneurology Index

I've spent several years thinking that this is what I have, but there is no real diagnosis for it. It's a long process of elimination much like trying to diagnose the disease fibromyalgia. I have constant tinnitus and often suffer from nausea/slight dizziness when I lean over, rotate my head, etc. I've been to the best ENT in my area and have had many many tests, but he can't say I have it for sure.

If all you are experiencing is tinnitus, then you are a long way off from having full blown Menieres. Rotational vertigo is very pronounced in those who truly have the disease, and it is very debilitating. I have never had this, but I do feel nauseated (car sick) most days and both of my ears ring constantly.

I realize we are on a weed forum, but I can't say that I've received any ear related medicinal benefits from smoked cannibus or tincture. The only thing that helps me with the nausea (not the tinnitus) is a 0.5 mg. tab of clonazepam. It will not address the tinnitis. I don't think there is any cure for that. But if your ear problem causes you to become nauseas, then clonazepam will truly help. Good luck!

Thanks for your reply.....it helps to see others with this crap. Its relativly new for me, started 3 or so years ago. The vertigo comes and goes as well but the sound of a black and white tv w static in the background of my left ear hasnt. Some days are good, some are bad. The smoking really just calms me down and relieves my anxiety at the end of the day when its bad. By 4 pm on a bad day im about to freak out usually. Caffeine seems to agitate it also, as well as atmosphere.

[JohnWaynebud]

This disease process is idiopathic, or of unknown origin; but the damage is to the inner ear. However, there is more than cause of this chronic condition. Depending on the cause, you might be a candidate for a type of surgery that will not result in bilateral deafness.

There are pharmacalogical options if you feel comfortable with that route. There are also vestibular exercise routines that might seriously help reduce the magnitude or frequency of your symptoms.

If it were me, I would consult an osteopathic doctor and a Doctor of Chinese Medicine. Believe it or not, they might be more affordable than you think, and you may even be able to find a good DO who is covered by your insurance As they are allowed ALL of the priveleges that are granted to MD's by the AMA; the difference is that they treat the whole patient versus treating the presenting symptoms philosophically.

A Doctor of Chinese Medicine will look at your whole being through a little understood philosophical approach with few experts in this country; which is based on over 2000 years of health data.

Often these two experts can compliment eachother, and tell you all of your options within each individuals meducal philosophy.

If you want some quick and thorough references check out a medical professional pathophysiology book or handbook at your local large booksellers for free (B&N, borders, etc). Then look at the thickest book on chinese medicine you can find and look for tinnitus, vertigo, etc... Also check out Paul pritchard's Healing with Whole foods for a more interpretable form of nutrition based on western scince and traditional chinese beliefs- lookup vertigo, tinnitus, etc...

[FreeDaHerb]

Do you live close to a military base?

[Islandborn]

No military base near me. My wife and I have discussed acupuncture and I may try it, what could it hurt, I try to be open minded. Today is a crappy day, wet and muggy here...and what feels like pressure in my ear. Last night was a good one, couldnt feel a thing....it sucks