Quote Originally Posted by Kandii
Hmm maybe I shall mention it to my Dr at the hosp next time, he's a tad scary tho, thinks he knows it all, which ok he prob knows alot, but im bored of being guinea pig for which ever drugs they decide to give me to get the UC to stettle. No probs re rant, we all need one! I've got so fed up I've even posted a pic of my pred moon face today on a facebook colitis group! I've found them most helpful for info, and to be able to chat and read about ppl in same or worse situation is better than what I had before, about 14 years of keeping this to myself as 'embarrassing'. Now I've got to the point where its so obvious something is a bit wrong, Im not so bothered. My 14 yr old daughter is having trouble accepting im gonna be trying the vapouriser to help me, so funny as it should be me telling her she cant do that type of thing now shouldnt it!! Lol, my son uses a little so thats where im getting it from at the mo, but will have to sort myself out getting it if im gonna be using it alot.
'specialist' is a bit of a con, in my experience they do not research hard enough to be a true specialist. you'd think with their chosen subject they would commit day and night reading up all different possible solutions- but they don't, they read from one book all their life like it is drilled into them. Mine had never even heard of the specific carbohydrate diet (SCD), nor had he heard of sativex - a potentially revolutionary drug and he had no clue it was available in the UK. what a joke. they don't care do they, that is all i'm left to think. they'll give you shitty toxic drugs and send you away, problem gone for them and they think they are doing a good job... and to deny that diet doesn't have a role in colitis...!!??

honestly, at the moment the issues around cannabis are more stressful and problematic for me than my colitis is. if i were in canada, the US or amsterdam, i go to the local pharmacy and pick up whatever i wanted, totally different quality of treatment ove there. here are some sites you might find useful as you are in the uk...

UK420.com - The Cannabis Community
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humedi Reviewed by humedi on . ulcerative colitis stressed, poor diet, had a curry, jan 2007 >> triggered what was later diagnosed as ulcerative colitis. was put on anti biotics before i had been diagnosed, these made me worse (and i believe wiped out some of the good bacteria in the gut). Went on the SCD diet but failed. was given asacol after i was diagnosed, april 2007 - bad for me. then went onto colozide - hair loss, ulcers, bad for me my experiences have left me feeling bitter at the NHS. they offer that toxic shite and ignore Rating: 5